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Date: 7/4/2016

Following a successful inaugural conference in 2015, we will be running this event again in 2016, focusing on the challenges associated with measuring the most relevant, robust and persuasive outcomes in ever more targeted patient populations.


The world of pharmaceuticals is changing; innovative targeted medicines are being developed to treat ever more defined patient populations and we have seen a gradual increase in the number of drugs developed for treating rare diseases.  The smaller and often more disparate nature of these patient groups can lead to obvious challenges for the generation of much needed RWE including the need for more targeted patient centric outcome measures to sit alongside the traditional clinical outcomes measures. 


The meeting will take place on Tuesday 26th April 2016 at Kings Fund, Cavendish Square, London.


4.00 pm Welcome to Session 1

  • Ever decreasing target patient populations

Professor Richard Barker OBE, Director, CASMI

  • Early access/AAR/CDF and the role of RWE

Professor Sarah Garner, Associate Director Science Policy and Research NICE 

Q&A / panel session




5.30 pm Welcome to Session 2

  • Rare Diseases

Sebastian Stachowiak General Manager, UK & Ireland, SHIRE Pharmaceuticals

Professor Atul Mehta, Consultant Haematologist, Royal Free Hospital

  • The importance of patient centric outcome measures: targeting the patient

Professor Nancy J Devlin, Director of Research, Office of Health Economics

  • Q&A / panel session

7.00 pm Networking and Drinks


Contact us via  for your personal invite if you would like to join this informative and thought provoking session where we will take a fresh look at how we need to better target our RWE efforts to stay ahead in this exciting field.

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